What can be achieved with an Organ Donation!

I had Kidney failure at the age of 33.

My Kidneys failed out of the blue due to high blood pressure (230/130) over 7 years ago. The world ended!

I went into depression for 2 years and hated everyone. I was not a nice person.

I started on PD (1lt only of fluid per day) lived in my dressing gown 4 days… Out drinking with the boys 3 nights on average 10/11 pints of… Vodka & Red bull! After 2 bouts of Peritonitis the 3rd nearly killed me! Told onto Haemodialysis and you’d expect me to change after 3 years… Nope still carried on only this time they had to remove 4-6lts of fluid each session and as my body was that bad with gout and Reynolds every session was painful to the point of passing out too.

I got married got a job so I worked and travelled 80 hours per week from 1 Feb 2012 to January 12 2013 as well as dialysis still 19.00 – 23.30… then drive home for 4 hours sleep before off to work again at 04.30. The transplant came about after some very strange predictions of when I would get a Kidney came true?

January 12th 2013 I at 37 had a full Stroke which stopped my speech for 30 hours.

Then I was diagnosed with Endocarditis and a hole in my Heart valve. Just to top it off also told the vegetation could come away at any time and kill me (bad yes, but gets worse) they can’t operate until the antibiotics are taken over the next 6 weeks (hoping I wake up every day).

Had op died for 2 minutes, kept under for an extra 12 hours, eventually back to Royal Derby for 7 months in hospital with… 3 bouts of valve infection In the peritoneum (operation) Heart at stopped and started (operation died for 1 minute) Dialysis arm backfilling to the point told I will lose my finger and possibly my right hand Operation to tie off artery (didn’t work) Operation to tie off fistula and put a temporary 1 in groin (worked) (18 months of physio for hand/finger) more infections Released for weekend the rushed in with hypertension and couldn’t breathe… Wife pulled aside and told I had 30 minutes to improve or would not last the night. Still here now with a passion to help others and encourage then to toe the line and understand there is hope even when you want to give up!

2014 had the chance to take my wife and stepson away to say thank you… paid for by the Brilliant BKPA (a massive thanks)

My first mile stone after getting my Kidney was to get out of bed on day 3 and walk 3.5 miles around the Nottingham City Hospital. My only focus at this point was the transplant games! March 30th 2015 I was given the all clear to train for my Events (brilliant feeling I can do sports again and compete with others)

April 13th 2015 my mum that had been very ill but kept fighting until I had got my Kidney and she could see this was going to change my life Died. 3 days later I turned 40, celebrated my mum’s life and her determination to do her best and never quit!

I chose sports I had never Coached in my past:-

10 pin bowling (Started practicing 1 April not good very weak)

Flat Bowls (first session indoors on April 16th My Birthday loved it)

Archery (as a family me/my wife 31/stepson 9 went to learn how to do Archery)

Table Tennis (spoke to a chap from the Derbyshire TT organisation who put me in contact with someone who played. So we met on the first time 7th May lots of room for improvement)

Cricket Ball Throw (as my knees and ankles are week I went to the park with a tape measure and got 45m so need more practice)

4×100 relay (is the last Event and I will start this training a month before) My next milestone was competing at the Transplant Team Racquets Event at Warrington/Widnes for Table Tennis… I got 2 Silver Medals (that was a shock)

I cannot put into words the amazing change physically I have! That Donor and family have given me the chance to live again and for the first time I can give my wife now the husband she deserves.

For this my first games British Transplant Games were at Newcastle/Gateshead on 27th July 2015 and it was an incredible feeling to be around so many special people that all had 1 thing in common a Donated Organ.

Results from the games

10 pin bowling Bronze

Archery Bronze

Table Tennis Bronze

Cricket ball throw Bronze

Flat bowls Not much on this

4X100 Relay Silver

Compete at Argentina for the WTG in the August was my inspiration even waiting for the Transplant on the day I was thinking how fit will I be after the op? My goal was to win 2 Golds and 2 other Medals.

I had my passport. My sponsor has just renewed his for the Games and he has the money for us both to go. Most importantly my Doctors have given me the all clear to go. BUT my Stepdad was told categorically “Don’t Fly”.

This was a very sad day for us both. Anyway after a lot of telling me “you must go and do it for your mum” He funded me and off I went.

The World Transplant Games were amazing and got to hear lots of personal journeys of the 10 days from so many transplant recipients with 40 year old Donated Organs… Wow!

During the games I achieved…

Tejo Pairs Gold

Bowling Pairs Gold

100m Sprint PB 14.29sec

Cricket Ball Throw PB 62.80m

The Gold Medals were for my Mum!

I must stress the amount of Time and effort the Transplant Team put in for this whole event to happen “Thank You All”

While in Argentina I was told of a pending Volleyball Tournament in Manchester so at that point decided to go and practice at Belper ‘Hammers’ Volleyball Club in the lead up to the Event.

The Event was great and in a mixed ability team we got Bronze and I got a double torn hamstring so on crutches for 2-4 weeks lol but worth it to once again say “I have a sports injury” I never thought I would have the chance to say it again!

So Christmas came and went and my next goal was The Match for Life April 30th at Newport County to play football against Ex-Professionals (Christian Malcolm/Andy Todd/Micky Flynn…) to promote awareness for Donors and the possibilities of receiving a Gift.

9th June I had the Opportunity to play football the time against the Hollyoaks cast to raise more awareness of Organ Donation and show there are no Boundaries.

European Transplant Games 10th July gave me the chance to complete 1 more of my goals, which was to complete the 3 major Transplant Events in 18 months…

This time I competed in…

Darts Silver Table Tennis Singles/Pairs No Medals

Tenpin Bowling Singles Gold (554 series)

Floorball Bronze Tenpin Bowling Doubles Gold

While helping many others in my team and other teams gain medals too.

British Transplant Games 28th July which I’m really looking forward too and training for to compete in Archery, Tenpin Bowling, Volleyball, 5-Aside Football, 100m Sprint, Cricket ball throw and 4X100m Relay (which I feel very privileged to be a part of).

Life really is so precious, I know how fortunate I am and will carry on pushing to achieve more because I can. Many people will never have the chances I have and many more didn’t get a chance sadly.

You don’t have to be dead to give a Kidney. You can then see what a massive change your Donation has given that person for the rest of your life… Thank you for listening!

Simon Elmore

Live Life, Do!