Case studies

Case study: Emily Norman

By |July 13th, 2015|

Emily had FSGS from the age of 2.  It was controlled with medication for a while but then she continued to swell and medication was not helping.  She ended up having to be put on haemo dialysis as she had gone into renal failure.  She was attending Nottingham Hospital 5 times a week for dialysis […]

Case study: Ashley Ramsurrun

By |July 13th, 2015|

In January 2000 I was diagnosed with a condition called Lupus, which was diagnosed after I suffered a pulmonary embolism. At the time I was having night sweats and was tired and breathless. It affected my kidneys and having spent 3 months in hospital the condition settled down. It was quite odd as my brother […]

Case study: Ellie Greenwood

By |July 2nd, 2015|

Ellie was diagnosed at the age of 3 months with a heptoblastoma and went rough 4 months of chemotherapy, after which due the location of the tumour she had to have a liver transplant at the age of 7 months.

As Ellie was our first child as a family it was devastating thinking that I had […]

Case study: Louise Mclellan

By |July 2nd, 2015|

I was born in 1970 with a complex congenital heart disorder. Being born with it I knew no different really, I struggled with p.e and exercise and got very out of breath but had a go at lots of things and led a pretty normal life whilst heart medicine made its advances.

Age 25 my health […]

Case study: William (Bill) Noble

By |June 29th, 2015|

In my youth my sport was swimming and  I managed to get selected for Great Britain in some minor International events, but owing to some erratic times I never quite managed to get to one of the big events; Olympic or World Championships.  In my late teens it was obvious that I had some problem, […]

Case study: Lucy Young

By |June 29th, 2015|

I was diagnosed with kidney failure at 3 and a half. I was put on lots of medication for everything you could possibly think of and I was under nearly every department in the hospital, endocrinology, urology and of course nephrology. This meant regular hospital appointments with endless blood tests. Growing up, my school life […]

Case study: Elizabeth (Liz) Schick

By |June 29th, 2015|


I was diagnosed with epitheliod hemangioendothelioma, a form of tumor in the blood vessels in my liver when I was 35 years old and my children were 6 and 8. I thought I was in good health and the diagnosis came as a total shock. I only have 2 stomach aches and thought the ultrasound […]

Case study: Rachel Hooley

By |June 29th, 2015|

In January 2012 Rachel aged 7 was a little under the weather, we took her to our local GP who said she had a heart murmur, nothing to worry about and made a follow up appointment. The next day Rachel was puffy and out of breath, we took her to our local A&E where they […]

Case study: Simon Elmore

By |June 24th, 2015|

What can be achieved with an Organ Donation!

I had Kidney failure at the age of 33.

My Kidneys failed out of the blue due to high blood pressure (230/130) over 7 years ago. The world ended!

I went into depression for 2 years and hated everyone. I was not a nice person.

I started on PD (1lt only […]

Case Study: Brenda Roberts

By |June 24th, 2015|

Respecting the gift

Two days away from death’s door.  That’s how close Brenda Roberts, 62, from Ruthin in Denbighshire came to dying from liver disease.  Fortunately for Brenda, a suitable organ was found in time and she underwent her life-saving liver transplant operation in 2012.

Brenda was 39 when she was diagnosed with liver disease, a condition […]